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Qualidade de Vida em Tumores da Região Pineal Pediátricos: Revisão de uma Série Institucional
| Summary: | Introduction: Pineal region tumors are rare in pediatric patients, representing a diagnostic and therapeutic challenge with a significant impact on survival and quality of life. The aim of this study is to review the institutional experience at Centro Hospitalar Universitário São João regarding pineal region tumors in pediatric patients and their impact on quality of life. Methods: A retrospective cross-sectional observational study was conducted over a 20-year period, including 15 pediatric patients with pineal region tumors. Clinical, histological, and therapeutic data were collected, along with an assessment of quality of life using the EORTC QLQ-C30 questionnaire. Results: Of the 15 patients included, 12 were male. The mean age at diagnosis was 10.2 years. Hydrocephalus was present at diagnosis in 46.6% of the patients. The most prevalent tumor histology was pineoblastoma. Quality of life was higher than that observed in patients from a Portuguese oncological cohort, except in the domain of pain, where it was comparable. Conclusions: The high quality of life reported by surviving patients underscores the importance of post-treatment follow-up, which should include not only clinical monitoring but also psychosocial support and cognitive and functional rehabilitation. Larger studies are needed to obtain generalizable results. |
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| Subject: | Medicina clínica Clinical medicine |
| Country: | Portugal |
| Document type: | master thesis |
| Access type: | Open |
| Associated institution: | Repositório Aberto da Universidade do Porto |
| Language: | Portuguese |
| Origin: | Repositório Aberto da Universidade do Porto |
| Summary: | Introduction: Pineal region tumors are rare in pediatric patients, representing a diagnostic and therapeutic challenge with a significant impact on survival and quality of life. The aim of this study is to review the institutional experience at Centro Hospitalar Universitário São João regarding pineal region tumors in pediatric patients and their impact on quality of life. Methods: A retrospective cross-sectional observational study was conducted over a 20-year period, including 15 pediatric patients with pineal region tumors. Clinical, histological, and therapeutic data were collected, along with an assessment of quality of life using the EORTC QLQ-C30 questionnaire. Results: Of the 15 patients included, 12 were male. The mean age at diagnosis was 10.2 years. Hydrocephalus was present at diagnosis in 46.6% of the patients. The most prevalent tumor histology was pineoblastoma. Quality of life was higher than that observed in patients from a Portuguese oncological cohort, except in the domain of pain, where it was comparable. Conclusions: The high quality of life reported by surviving patients underscores the importance of post-treatment follow-up, which should include not only clinical monitoring but also psychosocial support and cognitive and functional rehabilitation. Larger studies are needed to obtain generalizable results. |
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